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THE CHATTER BOX

 
  
  
  The Chatter Box : Blathering On
  
  
  
 
Messages 1 2 

Request for Michael Palin (althoug by montyfreak0234 on 21 March 2006 12:56pm
 
I have been trying to get www.ctf.org going on this site...most peple haven't heard of it...it's for people with Neurofibromatosis (NF) that effects 1:4000 for type 1 and 1:40000 for type two (I have type 1).
This disorder can be painful and it can kill you. With NF some common syntoms are: tumors inside and out of the body, optical glicomas, muscular distreophy, increased risk of scoliosis et cetera. I was really hoping for Michael to get involved...especially in the international summer camp that happens once a year and is great fun. Only people with NF can go unless they volenteer.
Michael, if you ever get this message can you contact me at montyfreak0234@yahoo.com and I would like to have proof that it was you and not some random person....
 
Re: Request for Michael Palin (although I am sure he wont read it) by arty_farty on 21 March 2006 1:01pm
 
i hope he dose read it. he might you know.
 
Re: Request for Michael Palin (although I am sure he wont read it) by Pdrummy on 21 March 2006 1:11pm
 
Sounds like a worthy cause, I hope he sees this too.
 
Re: Request for Michael Palin (although I am sure he wont read it) by kazzzz on 21 March 2006 1:13pm
 
Fingers crossed :)
 
Re: Request for Michael Palin (although I am sure he wont read it) by montyfreak0234 on 21 March 2006 9:20pm
 
I already get enough encouragement from my family (all of it) and the cello section at school (sarcasim) and the only people can turn to I either mret in places like this or through this camp...no one in my family knows what its like and satiistically no one in my school does either.
 
Re: Request for Michael Palin (although I am sure he wont read it) by montyfreak0234 on 21 March 2006 9:31pm
 
but on the bright side...i made $20some from an interveiw from a long time ago...about NF so "Always look on the Bright Side of Life" is one of my themes as well as "Bolwn' in the Wind" by Bob Dyaln
 
Re: Request for Michael Palin (although I am sure he wont read it) by montyfreak0234 on 22 March 2006 1:55pm
 
i am going to post random things about my trip as often as i can so this will remain nea the top where Michael will be more likely to read it.
 
Re: Request for Michael Palin (although I am sure he wont read it) by montyfreak0234 on 22 March 2006 2:26pm
 
i was the last one to arrive at the camp...
 
Re: Request for Michael Palin from a youn child who has a deadly disorder and has but one wish (alt by Louise on 23 March 2006 5:18am
 
Ah, montyfreak. You forgot the magic word!

;)
 
Re: Request for Michael Palin from a youn child who has a deadly disorder and has but one wish (alt by montyfreak0234 on 23 March 2006 9:13pm
 
it was around 5:30...whats the 'magic word'...please?'
 
Messages 1 2 




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