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THE CHATTER BOX

 
  
  
  The Chatter Box : Blathering On
  
  
  
 
New Year's Honours List by Spursfan on 30 December 2007 10:45am
 
I am feeling very proud about one of the recipients in this year's Honours List.

Les Oakley is the Chairman of the support group for the (rare) disease I have. He started the charity in 1985 as a contact for parents and guardians of children suffering from the juvenile version of the disease after their daughter developed the illness at the age of five in 1983. Adult sufferers contacted him and it became a registered charity in 1987.

One of the main aims of the charity is to raise money for research into the disease. Over £500,000 has been raised by donations and fundraising, and the charity has been able to fund many projects and has supported Myositis endeavours at King’s College Hospital, Great Ormond Street Hospital, University College London, Bath University, Hammersmith Hospital, Birmingham University, Manchester University, and the International Myositis Assessment and Clinical Study Group.

I gave a talk at the Support Group's annual conference last June and was able to at last meet Les and his wife Irene (as well as their daughters) who have dedicated their lives to, well, 'us'. They are a wonderful family, and so my husband and I were thrilled to read that Les is getting the M.B.E.

He is so much more deserving of this award than someone who gets it just for being a councillor, or being able to sing or play a sport.

Well done Les!!

http://www.dailyecho.co.uk/display.var.1932360.0.honours_for_hampshires_great_and_good.php

 
Re: New Year's Honours List by kazzzz on 30 December 2007 12:46pm
 
Oh yes, I know that in the Australian of the Year list it's so often full of sportsmen, and one quite often wins. I don't see that playing a sport warrants reward at all.
 
Re: New Year's Honours List by canaveralgumby on 31 December 2007 9:04pm
 
Anne, I didn't know you had such a thing. I have MS which is autoimmune malfunction that affects the nerves.

We need to PLAY IN THE DIRT, 1) giving our immune systems something constructive to do, and 2) getting us in touch with our inner children, which is good for any problem. :^)

email me if you want to talk further: canaveralgumby@yahoo.com

Back on subject, good for Mr. Oakley!

Similar American story, about Jon Huntsman, a philanthropist (interviewed by Glenn Beck on CNN this month):
http://transcripts.cnn.com/TRANSCRIPTS/0712/25/gb.01.html

 
Re: New Year's Honours List by Spursfan on 31 December 2007 9:39pm
 
I will defo email you but not tonight sorry as we have guests and I mustn't be rude hahahaha

Sorry to hear you have MS. I have DM - shall we start an exclusive 'initials' group hahahaha.

I will try to email you tomorrow.

Anne x
 
Re: New Year's Honours List by mrsthing on 1 January 2008 1:54am
 
I'm sorry to hear you both have health problems. You seem to be handling them with grace and humor, the best way to deal with stuff like this. Best of luck to both of you!
 
Re: New Year's Honours List by canaveralgumby on 2 January 2008 7:20am
 
Thank you mrsthing! I don't know about grace, but I try to stab at the humor.
 
Re: New Year's Honours List by Spursfan on 2 January 2008 8:08am
 
Yes, thank you from me too. And ditto re the humour, Cori!!!
 
Re: New Year's Honours List by mrsthing on 3 January 2008 1:59am
 
My 20-year-old niece has Ehler's-Danlos Syndrome. It has a host of symptoms, she's got hyperflexible joints and stretchy skin. She can easily bend her pinky all the way back until it rests flat on the back of her hand! Any one of her joints can spontaneously pop out, and they do so frequently, and if she can't pop it back in, she has to see a physical therapist. She's in pain a lot of the time, but she's been working on strenghtening her muscles to hold in the bones. She's a pretty upbeat person; attending a community college and getting her degree in nursing.
 



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